The hospice nurse and I went out to do two hospice admissions today. Both men lived out in the country about an hour drive from our office. Coincidently they lived about 10 miles from each other and were born two days apart.
We met with “Dave” and his family first. Dave was diagnosed with liver cancer just three months ago. He lives with his wife and three young children. He has had three chemotherapy treatments with no affect. Dave was hospitalized a few days ago secondary to an infection. Yesterday Dave and his wife were told by Dave’s Oncologist that the chemotherapy has not worked and there is no other treatment available. He recommended that Dave discharge home with hospice support.
When the nurse and I walked into Dave’s home, he was sitting in a recliner chair in the family room. He was so weak that his wife had to help him adjust in the seat. Dave speaks in such a quiet tone with some slurring that he is very hard to understand; although he strongly stated he wants a second opinion. His wife has already called two other large medical groups for that purpose.
I told Dave and his wife that he has to do things his way. Hospice does not come in and demand specific rules. We support patients and families their way. I added that he does not want any regrets of “I should have, I would have…..”
“Nick”, on the other hand was diagnosed at age five with a childhood muscle disease. Nine years ago, he was put on a ventilator and a feeding tube. He has been bedridden for many years. He too, has been in a recent decline to where he is weaker, needing more suctioning. Nick’s mother is very attentive to Nick. Due to his recent decline, she is checking him a bit more throughout each day. With those additional checks, Nick will ask his Mom, “Why are you checking me again?”
I so believe that each of
them truly aware of the reality deep inside.
I also so believe that it must be the most difficult thing for anyone to
face. I wish both of them peace and
comfort.
TWO DAYS
He was born on a Tuesday;
while he was born on that
Thursday.
Coincidently, just two days
later;
same week; same month; same
year.
Their childhood years were so
different.
One would not ever think
that their lives now would be
so parallel;
with each man facing similar
life struggles.
He was diagnosed at age five
with a rare childhood muscle
disease.
He has a feeding tube; a
ventilator.
He is so weak, he is
bedridden.
He, on the other hand, was
diagnosed
just three months ago with
cancer.
He has been in such a rapid
decline;
now needing help with all of
his needs.
Both want to live; want to
survive.
Mom has cared for him all of
his life.
“When he becomes
unresponsive;
then we will know it is time
to let him go.”
His doctors have told him no
more treatment.
The chemotherapy is no longer
working.
He wants a second opinion,
hoping for a cure.
“I am too young for this to
be how it ends.”
Both men with a loving, caring
family.
Both men not ready to say
goodbye.
I don’t blame either of them
as they are only thirty-nine.
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